Our goals:

  • Help as many children as possible suffering from various neuromuscular conditions to have a better quality of life;
  • Strengthen our financial position so we can continue helping more people and ensure our long term viability;
  • Bolster our partnerships with various health institutions and sponsors

Our history

The Foundation was founded in 2009 to leave a legacy for future generations who have not experienced polio, and the origin of the Foundation and the idea behind it came from members of the Association Polio Québec. During a trip to Ottawa to meet with the Polio Ottawa Association, they announced that they would use the closure clause in their by-laws, allowing them to stop the association’s operations if the number of members fell below 25, so they closed the books and distributed the remaining funds to organizations that worked with children.

When we returned to Montreal, the idea was to create a Foundation that would help children with neuromuscular disorders. Since polio cases are almost non-existent in Canada, the same situation of applying the closure clause would eventually arise. Hence the creation of the Fondation Ailes du Papillon.

The name Butterfly Wings was chosen in reference to the metaphor that says that the wing flapping of billions of butterflies can influence the climate on the other side of the planet.

We believe that this phenomenon could apply to the Foundation’s objectives, where through small actions, we can help and improve the quality of life of children with neuromuscular disorders and their families.

The Foundation’s funds come exclusively from donations, fundraising and the annual fundraising campaign. We have never received a government grant from any government.


  • WINES & CHEESE (3 occasions) 
  • GOLF TOURNAMENTS (2 occasions)  
  • MÉCHOUI BUFFET (2 occasions)

Join us for our 10th year anniversary event!

Board members

The Foundation operates exclusively with volunteers and our operating costs are very low. That is the way we want to keep it. To this end, here is the Foundation’s Board of Directors:

Jacques DeGagné

President, Co-Founder

Jean Karam


Christine Couture


Lise Deschênes


Denis Servant


Louise Côté


Dalia Ceron Gonzalez


Elisa Ceron Gonzalez


Help us help children

Make a donation and contribute to the financing of equipment and activities for children living with neuromuscular disorders in order to improve their quality of life.