Our Goals

  • Aider les enfants atteints de maladies neuromusculaires diverses afin d’avoir une meilleure qualité de vie;
  • Solidifier notre position financière afin de pouvoir aider davantage d’enfants et d’assurer notre pérennité;
  • Consolider des liens avec diverses institutions de santé et des partenaires engagés.

Become an ambassador in 2026!

Step into a role that changes lives

We are seeking our next ambassador and board member to help guide our mission to children with neuromuscular diseases.
If you have compassion and a desire to serve—now is your moment.
Apply today!

En revenant vers Montréal, l’idée a germé de créer une Fondation qui aiderait les enfants aux prises avec des maladies neuromusculaires. Étant donné que les cas de polio sont presqu’inexistants au Canada, la même situation d’appliquer la clause de fermeture viendrait éventuellement. D’où la création de la Fondation Ailes du Papillon.

Le nom Ailes du Papillon a été choisi en référence à la métaphore qui dit que les battements d’ailes de milliards de papillons peuvent influencer le climat de l’autre côté de la planète.

Nous croyons que ce phénomène pourrait s’appliquer aux objectifs de la Fondation, où par les petits gestes que nous poserions, nous pourrons aider et améliorer la qualité de vie d’enfants qui ont des maladies neuromusculaires ainsi que leurs familles.

Les fonds de la Fondation proviennent exclusivement de dons, de levées de fonds et de la campagne annuelle de financement. Nous n’avons jamais reçu de subvention gouvernementale de quelque gouvernement.

Please express your interest to us

Fill out the form below with a brief introduction. We will contact the selected candidates.

Our Story

The Foundation was established in 2009 to leave a legacy for future generations who have not experienced polio. The origin of the Foundation and the idea behind it came from members of the Polio Quebec Association. During a trip to Ottawa to meet with the Polio-Ottawa Association, they announced that they would be invoking the closure clause in their bylaws, allowing them to terminate the association’s operations if membership fell below 25. They therefore closed the books and distributed the remaining funds to organizations working with children. On returning to Montreal, the idea germinated to create a foundation that would help children with neuromuscular diseases. Given that cases of polio are almost non-existent in Canada, the same situation of applying the closure clause would eventually arise. Hence the creation of the Ailes du Papillon Foundation. The name Ailes du Papillon was chosen in reference to the metaphor that the flapping of the wings of billions of butterflies can influence the climate on the other side of the planet. We believe that this phenomenon could apply to the Foundation’s objectives, where through small gestures we can help and improve the quality of life of children with neuromuscular diseases and their families. The Foundation’s funds come exclusively from donations, fundraisers, and the annual fundraising campaign.

Fundraising

  • PERSIAN DINNER
  • WINE AND CHEESE (3 occasions)
  • GOLF TOURNAMENT (2 occasions)
  • MUSICAL EVENING WITH NATHALIE CHOQUETTE
  • ITALIAN DINNER
  • MÉCHOUI DINNER (2 occasions)

Fundraising

Shop online & contribute

Board members

The Foundation operates exclusively with volunteers and our operating costs are very minimal. This is the approach we want to maintain. To this end, here is the Foundation’s board of directors:

Dalia Ceron Gonzalez

President

Christine Couture

Vice-President, Treasurer

Jean Karam

Secretary

Denis Servant

Administrator

Elisa Ceron Gonzalez

Administrator

Marc Guilbert

Administrator

Help us help the kids

Make a donation and help fund equipment and activities for children living with neuromuscular disorders to improve their quality of life.